Want to create an interactive transcript for this episode?
Podcast: Once Upon A Gene
Episode: A Rare Collection - Batten Down the Hatches
Description: ONCE UPON A GENE - EPISODE 156A Rare Collection - Batten Down the HatchesThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSMy best friend- Kelly VandewerkerPrior to 2015, I lived a life unaffected by rare disease. When Effie became pregnant, I hosted her baby shower and couldn't wait for her baby to be born. I...