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Podcast: Kamidogu: Kombat Lives Here
Episode: Dear Raiden
Description: Raiden Pham is affected by UBA5 disease, a life threatening progressive neurological disorder that can cause muscle floppiness and stiffness simultaneously, seizures, brain abnormalities and much more. In fact, it is so rare that only about thirty suffer this unfortunate condition worldwide. At two years old, Raiden is unable to sit, walk or talk. He can barely control his arms, and is fed via a stomach tube.
Upon learning of Raiden’s battle, we knew we had to reach out to his father, Tommy. With little to no research being conducted, Raiden’s father founded the Raiden Scie...