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Podcast: Once Upon A Gene
Episode: A Rare Collection - New Beginnings
Description: ONCE UPON A GENE - EPISODE 170A Rare Collection - New BeginningsThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSNoelleWhen your child has a progressive, degenerative disease, you learn that every moment is precious and to roll with the punches. My son Logan has a rare genetic disorder called Sanfilippo Syndrome, a progressive a...