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Podcast: Once Upon A Gene
Episode: The Glass Child - Being a Sibling to My Rare Disease Sisters with Madison McLaughlin
Description: As a young girl, Madison McLaughlin made her way to LA to pursue acting and she's held roles in Chicago PD, Supernatural and Arrow. But she's also a rare disease super hero and celebrity in our community- the rare disease community. Madison's three younger sisters have been diagnosed with hypomyelination with brainstem and spinal cord involvement and leg spasticity (HBSL). EPISODE HIGHLIGHTSCan you share a bit about your sisters?I'm the oldest of four girls. Marissa is 18, Mallory is 16 and Mahrynn is 14. Marissa and Mahrynn have an ultra-rare disease t...