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Podcast: Once Upon A Gene
Episode: A Rare Collection - To the Moon and Back
Description: ONCE UPON A GENE - EPISODE 174A Rare Collection - To the Moon and BackThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSNicole WrightAfter many seizures, McCall was diagnosed with Dravet Syndrome. Since her diagnosis, her symptoms, seizures and developmental delays have worsened and multiple hospitalizations led to long recoveries. We have grieved M...