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Podcast: Once Upon A Gene
Episode: A Rare Collection - Exhausted and Energized
Description: ONCE UPON A GENE - EPISODE 178A Rare Collection - Exhausted and EnergizedThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSAnnie Kennedy, Rare disease advocate with the EveryLife FoundationI have a quote in my office that says "she took her power back without permission". As I stood in the back of the legislative c...