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Podcast: I Am Not My Pain with Melissa Adams
Episode: S2E16: Finding Your Voice and Identity when Growing Up with a Rare Bone Disorder – Part One
Description: Meet warrior, Marlena Chertock, who was born with spondyloepiphyseal dysplasia, a rare bone disorder and form of dwarfism resulting in short stature, chronic pain, arthritis, scoliosis, and more. Marlena grew up knowing she was different from her peers. Tune in as Marlena shares how she navigated those differences, bullying, chronic pain, and medical interventions to find her identity, advocate for important causes, and become a published author. Marlena has published two works of poetry called Crumb-sized: Poems and On that one-way trip to Mars. She works as a Communications Manager, Water at the World Resources Institute, sharing research and...