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Podcast: I Am Not My Pain with Melissa Adams
Episode: S2E17: Finding Your Voice and Identity when Growing Up with a Rare Bone Disorder – Part Two
Description: Continuing our discussion with warrior, Marlena Chertock, born with spondyloepiphyseal dysplasia, a rare bone disorder and form of dwarfism resulting in short stature, chronic pain, arthritis, scoliosis, and more. In Part Two, listen as Marlena describes what it was like to grow up with her condition and to begin to recognize the resilience of her body. She shares her journey to identifying as disabled and her thoughts on invisible disabilities in our society. Marlena has published two works of poetry called Crumb-sized: Poems and On that one-way trip to Mars. She works as a Communications Manager, Water at the...