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Podcast: Once Upon A Gene
Episode: Beginners Guide to Rare Disease - Anecdotes For Those Early Days of Diagnosis with Daniel DeFabio
Description: Daniel DeFabio and I are having a parent-to-parent discussion and bringing you guidance if you are a newly diagnosed family. We'll give you insight into our journeys, things that helped us along the way and ways we learned to cope and find hope. If you're a beginner and new in the club no one wants to be in, start here- this episode is for you.EPISODE HIGHLIGHTSOn diagnosis day, what are the important things to notice and what life lines should be sought out right away?Realize that no...