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Podcast: Once Upon A Gene
Episode: Rare Mama - Nikki McIntosh - Navigating Life with Rare
Description: Nikki McIntosh has been featured on The Disorder Channel in Life & Atrophy, a film about the day-to-day of raising a child with Spinal Muscular Atrophy and as a guest of Once Upon a Gene TV. She hosts a community called Rare Mamas where she shares tips, tools and inspiration for moms raising a child with a rare disease.EPISODE HIGHLIGHTSHow did you enter the world of rare?My husband and I have two sons, Mason and Miles. Miles has a rare degenerative neuromuscular disease called Spinal Muscular Atrophy (SMA...