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Podcast: Once Upon A Gene
Episode: A Rare Collection - A Father's Day Special - Amidst the Storm
Description: ONCE UPON A GENE - EPISODE 191A Rare Collection - A Father's Day Special - Amidst the StormThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSJessica FaresMy dad is a fixer by nature. He's watching his grandson struggle with the debilitating aspects of SYNGAP1 and his daughter learning to navigate the heartbreak of b...