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Podcast: SYNGAP1 Stories
Episode: Suzanne Jones, SRF BOD chair & Mom to Syngapian Jansen, talks about raising funds for SRF, including the upcoming SynGAP Soirée, and raising Jansen!
Description: Show Notes:
Suzanne Jones, SRF BOD chair & SYNGAP1 Mom, chats with Ashley about the upcoming Syngap Soirée fundraiser in Atlanta, caregivers, eating out (or not!), Jansen’s behavioral issues as well as her recent speech improvements, and advice to parents to modify their expectations when receiving a rare disease diagnosis.
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SRF BIO
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Jansen’s Warrior Story
Jansen’s Journey
More links:
  Syngap Soirée, Sparks of Hope - Atlanta, GA, August 26, 2...