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Podcast: Dr Golly and the Experts
Episode: Miller-Dieker syndrome and celebrating the life of Lily, with Priyanka Saha
Description: When Priyanka Saha attended her final pregnancy scan, she was told that her baby wouldn’t live very long. Lily was diagnosed with Miller Dieker Syndrome - a rare disorder that causes the outer part of a child's brain (the cerebral cortex) to be smooth causing severe developmental issues. Despite the heart-wrenching prognosis and knowing that Lily only had a limited time on earth, Priyanka and her husband made it their mission to make every day special.Â
LINKSÂ
https://www.instagram.com/the_lilyflower/Â
https://lilycalvert.com/Â Â
https://www.vsk.org.au/Â Â <...