Want to create an interactive transcript for this episode?
Podcast: Staying Connected
Episode: Jacqui Fish
Description: Jacqui Fish, whose 24 year-old son George has vascular Ehlers-Danlos Syndrome (VEDS) shares her experience as mom and George’s experience with VEDS, including a number of serious medical events, including a bowel perforation, artery dissections, posterior reversible encephalopathy syndrome (PRES), and pneumothorax.Â
Find more information about VEDS including support groups and medical webinars, at thevedsmovement.orgÂ
Links mentioned in the episode:Â
If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit https://calendly.com/d/z7h-2cc-g33
Real Talk: VEDS with Be...