Want to create an interactive transcript for this episode?
Podcast: The AuthorOnWheels Podcast
Episode: David Kirby, Duchenne’s Biggest Fighter and author of Prism: Shedding Light On Life with Duchenne
Description: My name is David and I have Duchenne muscular dystrophy. Duchenne is a neuromuscular disease characterized by progressive muscle weakness. It is the most common muscular dystrophy in boys, and it follows a similar trajectory in most people: losing the ability to walk around age 10, requiring ventilation in the early 20s, and survival into the late 30s is rare.
I grew up in Chicago and went to the University of Illinois (’13, MSW ’17). I was able to live on campus,
away from home, and be fully independent, thanks to a specialized residence program at the University. My unique living situation gave me t...