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Podcast: Once Upon A Gene
Episode: A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari
Description: ONCE UPON A GENE - EPISODE 214A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne RugariAnne Rugari is an advocating powerhouse, an author of two children's books, a mom, and two of her children have passed away from Krabbe disease. She joins us to share her personal story and also share her knowledge about tissue and organ donation.EPISODE HIGHLIGHTSCan you share how you became part of the rare disease world?<...