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Podcast: Living With Cystic Fibrosis
Episode: Two Salty Okes, Rena Barrow's story
Description: Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color. Even after her 22 year old son was diagnosed, doctors weren't sure her newborn baby had CF, They told her, "Maybe it was sickle cell."  She fought until her son Jahsir was properly diagnosed. The delay in diagnosis took a toll on her little guy.  When he ate he was always in pain (not prescribed enzymes until diagnosis) so now he has an aversion to food. Rena is motivated by her pe...