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Podcast: Once Upon A Gene
Episode: A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
Description: ONCE UPON A GENE - EPISODE 220A Rare Collection - From Financial Strain to Supportive Gain - A Call For ActionThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSKatie ScheidThe beginning of my care-giving journey was filled with trauma, disbelief and a complete re-shaping of the life I knew. My daughter Millie is three and a h...