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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: SED 481: A Massive Piece of the Quest for a Cure
Description: You're busy. Sometimes you think about how busy you were a year ago and think wistfully--man, that wasn't busy at all compared to now! But in spite of this busyness, there's something that's required from all Hao-Fountain patients.  If you need to donate to our biorepository because you haven't yet, email me here: bo [dot] bigelow [at] gmail.com.  Buzzy - personal vibrating ice pack for easier shots for kids. Order on Amazon here.Â