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Podcast: Once Upon A Gene
Episode: Top Tips on Advocating For Your Child with Momvocate Kara Karlson
Description: Kara Karlson is a fellow rare disease mama and attorney who is advocating hard in the policy world. She's currently serving on the Governor's Developmental Disability Advisory Council ("DDAC") where she helps set policy and develop programs for the developmentally disabled in Arizona. She is sharing her top tips for becoming your best advocate. EPISODE HIGHLIGHTSTell me about your daughter and how you are part of the rare disease community.I got involved with rare disease through my daughter. I had an uneventful pregnancy, everything was fine and she w...