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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2
Description: How could you change your mindset about taking your child with a rare disease to the doctor? Doctor visits can be overwhelming, especially when managing complex medical needs and balancing your family's well-being. This episode is about your mindset--learning to trust yourself and others. 1. Enlist two types of co-pilots for visits to make sure you don't miss anything. 2. Trust yourself, since you know your child better than anyone. 3. Hear from Harvard-educated pediatrician Dr. Bell about the best ways to help your doctor help you. Tune in now to gain...