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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
Description: From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection? If you've ever felt uncomfortable or angry when strangers or even loved ones don't know how to interact with your child, this episode will help you shift your mindset. By assuming good intentions and leading with compassion, you can turn difficult moments into chances to educate and connect. 1. Learn how to...