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Podcast: Once Upon A Gene
Episode: Living with Persistent Uncertainty without a Rare Disease Diagnosis with Meghan Halley
Description: ONCE UPON A GENE - EPISODE 088Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan HalleyI met Meghan Halley on the NORD Living Rare Living Stronger planning committee. She co-chairs the patient and family support group for the Undiagnosed Diseases Network. She's a Stanford research scholar and a mom to her undiagnosed son Philip. EPISODE HIGHLIGHTSCan you share about yourself?I'm the mom of three kids and my middle son Philip, who is six years old, i...