Episode: Sarah Tompkins, on Having Ehlers-Danlos Syndrome, Having a Mis-Understood Disease, and Taking a Lead in Advocacy
Description: In this episode, Sarah Tompkins, Patient Advocate of Ehlers-Danlos Syndrome, chats with WCGās President of Patient Advocacy, Steve Smith. During their discussion, Sarah shares with us her experience being a patient with a genetic rare disease who is involved in a clinical trial.
Click any word to see translations, usage examples & similar words. Then learn them using saved words.
Text not synced with the audio? See here for why certain podcasts won't sync.
