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Podcast: Once Upon A Gene
Episode: Rare Like Us with Taylor Kane
Description: ANNOUNCEMENTSDon't forget to register for the NORD 2020 Living Rare, Living Stronger Patient and Family Forum streaming July 18th-19th. I'll be on the parent panel on the 19th talking about stress reduction and caregiver well being. Register here. Head over to podcastawards.com and nominate Once Upon a Gene for The People's Choice Award under the Society-Culture category.Disorder: The Rare Disease Film Festival was supposed to be held in May and was cancelled due to COVID. These films are important in connecting families and researchers across the world. Bo Bigelow and D...