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Podcast: Once Upon A Gene
Episode: Films and Fatherhood
Description: ONCE UPON A GENE - EPISODE 015Films and FatherhoodDaniel DeFabio is joining us today to share his experience and perspective as a father of a son with a rare disease called Menkes. Daniel is a contributing author to The Mighty and the Co-Founder of the Rare Disease Film Festival. EPISODE HIGHLIGHTSTell us about your son Lucas.The good news is that he has just turned eleven years old. He was diagnosed with Menkes at age one and we've been dealing with this rare disease journey for ten y...