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Podcast: Living With Cystic Fibrosis
Episode: Rare Disease Diversity, Jenifer Waldrop
Description: I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC) in October 2022. The organization address challenges faced by rare disease patients of color. They bring together rare disease experts, health and diversity experts.Their Vision: a world without health disparities in rare disease patients’ communities.Missio...