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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2
Description: Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2 What happens when a medical professional dismisses your concerns about your child's health? How do you move forward when you're made to feel like you're imagining things? If you're a parent of a child with a rare disease, you've probably faced moments of disbelief from others—especially from those you trusted to help. This episode dives into one such experience, sharing practical insights on how to navigate this emotional and isolating journey while advocating for your child. Learn how to re...