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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2
Description: Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2 Have you ever been told you're wrong about your child's needs, only to trust your gut and be proven right? If you're a parent of a child with cortical visual impairment (CVI), navigating medical appointments and creating a supportive environment can feel overwhelming. This episode dives into a real-life journey of overcoming dismissal from professionals and finding clarity and solutions for CVI. Learn how to advocate effectively for your child, even when faced with skepticism from experts. Discover practical strategies...