Want to create an interactive transcript for this episode?
Podcast: Once Upon A Gene
Episode: The 12 Commandments to guide you when you're starting a rare disease patient advocacy group - With Nasha Fitter and Mike Graglia
Description: ONCE UPON A GENE - EPISODE 094With The Mike and Nasha Part IIFOXG1 advocate Nasha Fitter and SYNGAP1 advocate Mike Graglia are leaders in the rare disease community and two of the top parent leaders in the advocacy game. In this episode, they're sharing their knowledge, expertise and experiences in an information-packed masterclass on how to build a rare disease patient advocacy group, get funding and forge a path to a cure. EPISODE HIGHLIGHTSWhere do you start?The f...