Want to create an interactive transcript for this episode?
Podcast: Mission Matters Innovation with Adam Torres
Episode: Parent-Led Science: Ana Rita Moreiraβs Fight for Rare Disease Research
Description: In this Mission Matters Milken Conference Series episode, Adam Torres interviews Ana Rita Moreira, Executive Director of v-ATPase Alliance. Ana Rita shares how a rare diagnosis for her son led her to found a nonprofit that collects critical data to drive research for ultra-rare genetic conditions. Through grassroots collaboration and strategic advocacy, her organization is filling the scientific gap where few others will.
Follow Adam on Instagram at https://www.instagram.com/askadamtorres/ for up to date information on book releases and tour schedule.
Apply to be a guest on our podcast:
https...