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Podcast: ListenABLE
Episode: Rita Havea (Model & Advocate with Charcot-Marie-Tooth) #128
Description: In this episode of ListenABLE, Angus O'Loughlin and Dylan Alcott are joined by Rita Havea, a model, content creator and disability advocate living with Charcot-Marie-Tooth disease (CMT), a progressive genetic neuromuscular condition, "Went and saw a genetic counsellor, linked myself to CMT support groups, did as much research as possible,'cause I felt that made me feel stronger in myself". The conversation also delves into how disability can affect family dynamics, particularly when conditions go unrecognised across generations. Rita reflects on her mother’s undiagnosed CMT and how this shaped their family’s understanding of disab...