Want to create an interactive transcript for this episode?
Podcast: Invisible Not Broken - Chronic Illness Podcast Network
Episode: Aggressive Systemic Mastocytosis: Life, Advocacy, and Resilience: author Rachell Largent Phillips
Description: KeywordsAggressive Systemic Mastocytosis, chronic illness, advocacy, mental health, writing, self-care, body image, healthcare activism, rare diseases, educationSummaryIn this conversation, Rachel Largent Phillips shares her journey with aggressive systemic mastocytosis, a rare disorder that significantly impacts her daily life. She discusses the challenges of living with a chronic illness, including navigating the healthcare system, advocating for herself and others, and the emotional toll of writing her book, 'Life Beyond the Flare.' Rachel emphasizes the importance of self-care, mental health, and authenticity in the face...