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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: SED 447: Island Blues
Description: It is our long-awaited week off in the summer. It's our turn at the island house we share with my wife's siblings. And just about every moment Tess is trying to tell us something very specific. New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  My blog about our life with Tess More information about Hao-Fountain Syndrome or USP7 Â