Want to create an interactive transcript for this episode?
Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: SED 419: Tess Knows How to Deal
Description: Life with Tess can be pretty darn challenging sometimes. When things go south, there's one method we have that always makes everything better. It requires no equipment, it travels with us wherever we go, and it costs zero dollars. Hayden Faith is Tess's Schaaf-Yang Syndrome sister. They even share a birthday! Hayden's folks Matt and Courtney Blickley have started a nonprofit to fund SYS research. Check out Faith for Hayden here:Â https://faithforhayden.org/