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Podcast: Stronger Every Day: For Parents of Children with Rare Diseases
Episode: SED 418: Start Here
Description: So you or someone you love has been diagnosed with Hao-Fountain Syndrome. Now what? It can definitely be overwhelming. But here are some resources. And some ways to get involved.  If you or someone in your family has just been diagnosed with Hao-Fountain Syndrome or USP7, please join our private Facebook or Discord groups. Click below and then request to join the private group. Facebook: https://www.facebook.com/groups/969399453182041/ Discord: discord.gg/7UFUPAFs8K  To get connected to Dr. Schaaf, email Bo Bigelow here: bo.bigelow@usp7...