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Podcast: Twiniversity Podcast with Natalie Diaz
Episode: My Son Has IPEX Syndrome and Needs a Lifesaving Transplant | Twin Mom Allison Creech
Description: Nat chats with Allison Creech, mom of twin boys plus an older singleton boy, who is dealing with her son Micah's terminal diagnosis of IPEX Syndrome which will require a bone marrow transplant. Allison shares her feelings around this diagnosis, how she is managing her three boys, and how her faith is helping to get her through this time.IPEX is a genetic disease of immune dysregulation in which patients can present early in life with diarrhea, diabetes, and eczema. It is extremely rare, affecting 1 in every 1.6 million people. Patients with IPEX have abnormalities in the FOXP3 g...