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Podcast: Once Upon A Gene
Episode: Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
Description: ONCE UPON A GENE - EPISODE 105Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona Christopher Velona is a rare dad on a mission, driving the goals of Project Sebastian. He joins me to share open, honest and vulnerable experiences from his life since his son Sebastian was diagnosed with Battens disease.EPISODE HIGHLIGHTSCan you tell us about your family?I have two boys, ages 16 and 18, Gage and Sebastian. S...