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Podcast: Once Upon A Gene
Episode: Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
Description: ONCE UPON A GENE - EPISODE 051 Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice Charlotte was born with a rare form of congenital heart disease called Truncus Arteriosus. After Charlotte was born, her mom, Sonja Voice, found support groups and found the hope she needed to advocate for Charlotte. EPISODE HIGHLIGHTS Can you tell us about Charlotte? My daughter was born at the end of March with a rare diagnosis, Truncus Arteriosus. I traveled from my home in Seattle to Boston to deliver Charlotte s...