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Episode: Living with Friedreich’s Ataxia: Aoife’s Fight
Description: There’s a campaign gathering attention online right now calling for a life-changing medication to be made available in Ireland. Aoife Quinn from Galway who is living with a rare condition called Friedreich’s Ataxia, has started a petition asking the government to make the drug Skyclarys accessible here for patients who need it.  The treatment is already approved in other countries and could help slow the progression of the condition. Aoife joins us now to tell us more about her story and why she’s pushing for change.