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Podcast: Once Upon A Gene
Episode: A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen
Description: ONCE UPON A GENE - EPISODE 116A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke RosenLuke Rosen is a dadvocate who founded the KIF1A organization to seek a cure for his daughter Susannah who was diagnosed with KIF1A. Luke shares personal details about his recent medical difficulties and opens the raw dialogue around what happens when a caregiver dies. EPISODE HIGHLIGHTSCan you tell us about your daughter and the KIF1A diagnosis?