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Podcast: Once Upon A Gene
Episode: Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman Krishnan
Description: ONCE UPON A GENE - EPISODE 118Ambiguous Medical Plans - How to Figure Out a System Even When it Seems Impossible with Parvathy Raman KrishnanParvathy Krishnan joins me to discuss being an administrator for your kids and the uncertainty that stems from not having a care plan in place, like when you have an ultra-rare disease kid like she does. She has endured more than most on her rare parenting journey, yet she perseveres every day with courage to advocate and make a difference. To know her is to love her.<...