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Podcast: Once Upon A Gene
Episode: One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander
Description: ONCE UPON A GENE - EPISODE 119One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn AlexanderKathryn Alexander is the mother of three kids and her rare disease story starts when she gave birth to twins and a newborn screening on her son came back positive for Spinal Muscular Atrophy (SMA). It's one of the five percent of rare diseases that has a treatment and her son is the youngest to receive it.Β EPISODE HIGHLIGHTSC...