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Podcast: Once Upon A Gene
Episode: Adapting and Collaborating to Help Bring a Cure to GSD1B with Sophie's Hope Foundation Founder and Dadvocate Jamas LaFreniere
Description: ONCE UPON A GENE - EPISODE 124Adapting and Collaborating to Help Bring a Cure to GSD1B with Sophie's Hope Foundation Founder and Dadvocate Jamas LaFreniereJamas LaFreniere is the rad dad to Sophie, who has an ultra-rare glycogen storage disease called GSD1B. He’s also the founder of Sophie’s Hope Foundation and CureGSD1b. EPISODE HIGHLIGHTSTell us about Sophie's diagnosis and the foundation you started.Sophie just turned 4 years old and was diagnosed with...