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Podcast: Once Upon A Gene
Episode: Self Care for Your Healthcare with Ehlers Danlos Patient and Ms. Wheelchair Washington USA - Sarah Tompkins
Description: ONCE UPON A GENE - EPISODE 129Self Care for Your Healthcare with Ehlers Danlos Patient and Ms. Wheelchair Washington USA - Sarah TompkinsMs. Wheelchair Washington USA 2022, Sarah Tompkins has Ehlers Danlos Syndrome (EDS), she does extensive rare disease advocacy work, and centers her messaging around her slogan- practice self care for your healthcare. EPISODE HIGHLIGHTSTell us about your EDS journey and advocacy work.I'm an Ehlers Danlos Syndrome and chronic pain patient and rare disease, d...