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Podcast: PodcastDX
Episode: Familial cerebral cavernous malformation
Description: This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan.  [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cerebral hemorrhages". (credits: GARD) Megan is a mom to twins — identical 17-year-old girls — and a 13-year-old son. She, her husband, and kids live just outside of Phoenix. She is a writer, caregiver, and mom. Maybe most importantly, Megan is also an advocate for rare di...