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Podcast: Once Upon A Gene
Episode: A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis Bullosa
Description: ONCE UPON A GENE - EPISODE 141A Rare Mama Bear - Being a Single Parent and Adopting a Rare Disease Child with Epidermolysis BullosaLaura Dellicker is a hardworking mom who adopted a little boy named Salim four years ago. Salim has a rare disease called Epidermolysis Bullosa (EB). Laura shares her story of rare disease adoption and what inspired her decision.EPISODE HIGHLIGHTSCan you tell us about Salim?My son Salim is 7 years old and he has two...