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Podcast: Once Upon A Gene
Episode: Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr Hamza
Description: ONCE UPON A GENE - EPISODE 142Half of the Day She's a Diversity Champion, the Other Half a Rare Disease Mom and Caregiver with Yosr HamzaYosr Hamza is a lawyer, caregiver, and mom and she joins us to talk about what it's like to be a parent to a child with a rare disease in the Middle East, where rare disease isn't as accepted or normalized. EPISODE HIGHLIGHTSHow have you navigated having a child with a rare disease and discovered y...