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Podcast: Once Upon A Gene
Episode: A Rare Collection - I Will Never Forget
Description: ONCE UPON A GENE - EPISODE 148A Rare Collection - I Will Never ForgetThere's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTSElli BrimbleAs a researcher and genetic counselor, I work behind the scenes to help families craft their own stories. I met Nasha Fitter in 2016 when her daughter developed infantile spasms during a f...