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Podcast: Sickboy
Episode: Rare Disease Advocacy w/ Lelainia Lloyd
Description: Lelainia Lloyd is a rare disease patient, advocate, educator living on the beautiful west coast of Canada, just outside of Vancouver, B.C. She was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in 2012 after initially being misdiagnosed with Multiple Sclerosis (MS) in 2007. She has lived with NMO since she was 12. Lelainia joins the fellas to talk about NMOSD and her published papers in The Journal of Medical Imaging & Radiation Sciences and a year-long column, The View From Here on life with NMO for BioNews.
Join the post-episode conversation over on Discord! https://discord.gg/expeUDN